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Sitting Pretty

Author : Rebekah Taussig
Publisher : HarperCollins
Release : 2020-08-25
Category : Biography & Autobiography
ISBN : 9780062936813

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Book Sitting Pretty Description/Summary:

A memoir-in-essays from disability advocate and creator of the Instagram account @sitting_pretty Rebekah Taussig, processing a lifetime of memories to paint a beautiful, nuanced portrait of a body that looks and moves differently than most. Growing up as a paralyzed girl during the 90s and early 2000s, Rebekah Taussig only saw disability depicted as something monstrous (The Hunchback of Notre Dame), inspirational (Helen Keller), or angelic (Forrest Gump). None of this felt right; and as she got older, she longed for more stories that allowed disability to be complex and ordinary, uncomfortable and fine, painful and fulfilling. Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. By exploring this truth in poignant and lyrical essays, Taussig illustrates the need for more stories and more voices to understand the diversity of humanity. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write an entirely different story.

Sitting Pretty

Author : Rebekah Taussig
Publisher : HarperOne
Release : 2021-07-06
Category : Uncategorized
ISBN : 0062936808

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Book Sitting Pretty Description/Summary:

A memoir-in-essays from disability advocate and creator of the Instagram account @sitting_pretty Rebekah Taussig, processing a lifetime of memories to paint a beautiful, nuanced portrait of a body that looks and moves differently than most. Growing up as a paralyzed girl during the 90s and early 2000s, Rebekah Taussig only saw disability depicted as something monstrous (The Hunchback of Notre Dame), inspirational (Helen Keller), or angelic (Forrest Gump). None of this felt right; and as she got older, she longed for more stories that allowed disability to be complex and ordinary, uncomfortable and fine, painful and fulfilling. Writing about the rhythms and textures of what it means to live in a body that doesn't fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. By exploring this truth in poignant and lyrical essays, Taussig illustrates the need for more stories and more voices to understand the diversity of humanity. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write an entirely different story.

Sitting Pretty

Author : Rebekah Taussig
Publisher : HarperOne
Release : 2020
Category : Disabilities
ISBN : 0062936794

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Book Sitting Pretty Description/Summary:

A memoir-in-essays from Rebekah Taussig, disability advocate and creator of the Instagram account @sitting_pretty, reflecting on identity, accessibility, and representation and processing a lifetime of memories to paint a more beautiful, nuanced portrait of a body that looks and moves differently than most. Rebekah Taussig has been paralyzed for as long as she can remember but didn't begin to unpack it until she was in her mid-twenties working on a PhD in disability studies. She began writing mini-essays about what it means to live as a disabled woman and exploring the limited ways we typically see disability: something monstrous (the Hunchback of Notre Dame), inspirational (Helen Keller), or angelic (Forrest Gump). She longed for stories that reflected her experiences--stories that allowed disability to be complex and ordinary, uncomfortable and fine, painful and fulfilling. Sitting Pretty offers an honest look at disability and its effects on identity, love, money, and self-worth. Writing about the rhythms and textures of what it means to live in a body that doesn't fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and the false idea of "ableism." Disability affects all of us, directly or indirectly, at one point or another. We all need more stories and more voices to understand the diversity of humanity. A timely reminder to look beyond ourselves and our singular experiences, Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write an entirely different story.

A Dream Called Home

Author : Reyna Grande
Publisher : Washington Square Press
Release : 2019-07-02
Category : Biography & Autobiography
ISBN : 9781501171437

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Book A Dream Called Home Description/Summary:

From bestselling author of the remarkable memoir, The Distance Between Us comes an inspiring account of one woman’s quest to find her place in America as a first-generation Latina university student and aspiring writer determined to build a new life for her family one fearless word at a time. “Here is a life story so unbelievable, it could only be true” (Sandra Cisneros, bestselling author of The House on Mango Street). As an immigrant in an unfamiliar country, with an indifferent mother and abusive father, Reyna had few resources at her disposal. Taking refuge in words, Reyna’s love of reading and writing propels her to rise above until she achieves the impossible and is accepted to the University of California, Santa Cruz. Although her acceptance is a triumph, the actual experience of American college life is intimidating and unfamiliar for someone like Reyna, who is now estranged from her family and support system. Again, she finds solace in words, holding fast to her vision of becoming a writer, only to discover she knows nothing about what it takes to make a career out of a dream. Through it all, Reyna is determined to make the impossible possible, going from undocumented immigrant of little means to “a fierce, smart, shimmering light of a writer” (Cheryl Strayed, author of Wild); a National Book Critics Circle Award Finalist whose “power is growing with every book” (Luis Alberto Urrea, Pultizer Prize finalist); and a proud mother of two beautiful children who will never have to know the pain of poverty and neglect. Told in Reyna’s exquisite, heartfelt prose, A Dream Called Home demonstrates how, by daring to pursue her dreams, Reyna was able to build the one thing she had always longed for: a home that would endure.

Say Hello

Author : Carly Findlay
Publisher : HarperCollins Australia
Release : 2019-02-01
Category : Biography & Autobiography
ISBN : 9781460709399

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Book Say Hello Description/Summary:

A forthright, honest and rousingly triumphant memoir from a woman who has to live with a highly visible different appearancedue to a rare skin condition. Say hello to Carly. 'In fairytales,the characters who look different are often castas the villain or monsters. It's only when they shed their unconventional skinthat they are seen as "good" or less frightening. There are very fewstories where the character that looks different is the hero of the story ... I've been the hero of mystory - telling it on my own terms, proud about my facial difference anddisability, not wanting a cure for my rare, severe and sometimes confrontingskin condition, and knowing that I am beautiful even though I don't have beautyprivilege.' This honest, outspoken and thought-provoking memoir by award-winning writer and appearance activist Carly Findlay will challenge all your assumptions and beliefs about what it is like to have a visibly different appearance. Carly lives with a rare skin condition, Ichthyosis, and what she faces every day, and what she has to live with, will have you cheering for her and her courage and irrepressible spirit. This is both a moving memoir and a proud manifesto on disability and appearance diversity issues. 'Believe the hype - by turns frank, funny, and fearsome, Findlay's extraordinary memoir is an early contender for 2019's best Australian non-fiction ... a powerful and moving invitation to examine the structures of privilege and dehumanisation that we so desperately need address in this country.' Better Read Than Dead 'A proud celebration of appearance difference ... a valuable read.' Herald Sun 'Defiant, unsettling and thought-provoking' The Age

Haben

Author : Haben Girma
Publisher : Twelve
Release : 2019-08-06
Category : Biography & Autobiography
ISBN : 9781538728710

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Book Haben Description/Summary:

The incredible life story of Haben Girma, the first Deafblind graduate of Harvard Law School, and her amazing journey from isolation to the world stage. Haben grew up spending summers with her family in the enchanting Eritrean city of Asmara. There, she discovered courage as she faced off against a bull she couldn't see, and found in herself an abiding strength as she absorbed her parents' harrowing experiences during Eritrea's thirty-year war with Ethiopia. Their refugee story inspired her to embark on a quest for knowledge, traveling the world in search of the secret to belonging. She explored numerous fascinating places, including Mali, where she helped build a school under the scorching Saharan sun. Her many adventures over the years range from the hair-raising to the hilarious. Haben defines disability as an opportunity for innovation. She learned non-visual techniques for everything from dancing salsa to handling an electric saw. She developed a text-to-braille communication system that created an exciting new way to connect with people. Haben pioneered her way through obstacles, graduated from Harvard Law, and now uses her talents to advocate for people with disabilities. Haben takes readers through a thrilling game of blind hide-and-seek in Louisiana, a treacherous climb up an iceberg in Alaska, and a magical moment with President Obama at The White House. Warm, funny, thoughtful, and uplifting, this captivating memoir is a testament to one woman's determination to find the keys to connection. "This autobiography by a millennial Helen Keller teems with grace and grit." -- O Magazine "A profoundly important memoir." -- The Times ** As featured in The Wall Street Journal, People, and on The TODAY Show ** A New York Times "New & Noteworthy" Pick ** An O Magazine "Book of the Month" Pick ** A Publishers Weekly Bestseller **

The Pretty One

Author : Keah Brown
Publisher : Simon and Schuster
Release : 2019-08-06
Category : Biography & Autobiography
ISBN : 9781982100551

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Book The Pretty One Description/Summary:

From the disability rights advocate and creator of the #DisabledAndCute viral campaign, a thoughtful, inspiring, and charming collection of essays exploring what it means to be black and disabled in a mostly able-bodied white America. Keah Brown loves herself, but that hadn’t always been the case. Born with cerebral palsy, her greatest desire used to be normalcy and refuge from the steady stream of self-hate society strengthened inside her. But after years of introspection and reaching out to others in her community, she has reclaimed herself and changed her perspective. In The Pretty One, Brown gives a contemporary and relatable voice to the disabled—so often portrayed as mute, weak, or isolated. With clear, fresh, and light-hearted prose, these essays explore everything from her relationship with her able-bodied identical twin (called “the pretty one” by friends) to navigating romance; her deep affinity for all things pop culture—and her disappointment with the media’s distorted view of disability; and her declaration of self-love with the viral hashtag #DisabledAndCute. By “smashing stigmas, empowering her community, and celebrating herself” (Teen Vogue), Brown and The Pretty One aims to expand the conversation about disability and inspire self-love for people of all backgrounds.

The Revised Fundamentals of Caregiving

Author : Jonathan Evison
Publisher : Algonquin Books
Release : 2013-05-07
Category : Fiction
ISBN : 9781616203177

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Book The Revised Fundamentals of Caregiving Description/Summary:

In The Revised Fundamentals of Caregiving (releasing June 24, 2016 as a Netflix Original Film titled The Fundamentals of Caring, starring Paul Rudd and Selena Gomez), Jonathan Evison, author of the new novel This Is Your Life, Harriet Chance! and the New York Times bestseller West of Here, has crafted a novel of the heart, a story of unlikely heroes in a grand American landscape. For Ben Benjamin, all has been lost--his wife, his family, his home, his livelihood. Hoping to find a new direction, he enrolls in a night class called The Fundamentals of Caregiving, where he will learn to take care of people with disabilities. He is instructed about professionalism, about how to keep an emotional distance between client and provider, and about the art of inserting catheters while avoiding liability. But when Ben is assigned his first client--a tyrannical nineteen-year-old boy named Trevor, who is in the advanced stages of Duchenne muscular dystrophy--he soon discovers that the endless service checklists have done nothing to prepare him for the reality of caring for a fiercely stubborn, sexually frustrated teenager who has an ax to grind with the whole world. Over time, the relationship between Ben and Trev, which had begun with mutual misgivings, evolves into a close friendship, and the traditional boundaries between patient and caregiver begin to blur. The bond between them strengthens as they embark on a road trip to visit Trev’s ailing father--a journey rerouted by a series of bizarre roadside attractions that propel them into an impulsive adventure disrupted by one birth, two arrests, a freakish dust storm, and a six-hundred-mile cat-and-mouse pursuit by a mysterious brown Buick Skylark. By the end of that journey, Trev has had his first taste of love, and Ben has found a new reason to love life. Bursting with energy and filled with moments of absolute beauty, this big-hearted and inspired novel ponders life’s terrible surprises as well as what it takes to truly care for another human being.

Building Access

Author : Aimi Hamraie
Publisher : U of Minnesota Press
Release : 2017-11-01
Category : Architecture
ISBN : 9781452955568

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Book Building Access Description/Summary:

“All too often,” wrote disabled architect Ronald Mace, “designers don’t take the needs of disabled and elderly people into account.” Building Access investigates twentieth-century strategies for designing the world with disability in mind. Commonly understood in terms of curb cuts, automatic doors, Braille signs, and flexible kitchens, Universal Design purported to create a built environment for everyone, not only the average citizen. But who counts as “everyone,” Aimi Hamraie asks, and how can designers know? Blending technoscience studies and design history with critical disability, race, and feminist theories, Building Access interrogates the historical, cultural, and theoretical contexts for these questions, offering a groundbreaking critical history of Universal Design. Hamraie reveals that the twentieth-century shift from “design for the average” to “design for all” took place through liberal political, economic, and scientific structures concerned with defining the disabled user and designing in its name. Tracing the co-evolution of accessible design for disabled veterans, a radical disability maker movement, disability rights law, and strategies for diversifying the architecture profession, Hamraie shows that Universal Design was not just an approach to creating new products or spaces, but also a sustained, understated activist movement challenging dominant understandings of disability in architecture, medicine, and society. Illustrated with a wealth of rare archival materials, Building Access brings together scientific, social, and political histories in what is not only the pioneering critical account of Universal Design but also a deep engagement with the politics of knowing, making, and belonging in twentieth-century United States.

Strangers Assume My Girlfriend Is My Nurse

Author : Shane Burcaw
Publisher : Roaring Brook Press
Release : 2019-04-30
Category : Young Adult Nonfiction
ISBN : 9781626727694

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Book Strangers Assume My Girlfriend Is My Nurse Description/Summary:

With his signature wit, twenty-something author, blogger, and entrepreneur Shane Burcaw is back with an essay collection about living a full life in a body that many people perceive as a tragedy. From anecdotes about first introductions where people patted him on the head instead of shaking his hand, to stories of passersby mistaking his able-bodied girlfriend for a nurse, Shane tackles awkward situations and assumptions with humor and grace. On the surface, these essays are about day-to-day life as a wheelchair user with a degenerative disease, but they are actually about family, love, and coming of age. Shane Burcaw is one half of the hillarious YouTube duo, Squirmy and Grubs, which he runs with his girlfriend, now fiancee, Hannah Aylward.

My Sense of Silence

Author : Lennard J. Davis
Publisher : University of Illinois Press
Release : 2010-10-01
Category : Biography & Autobiography
ISBN : 9780252090943

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Book My Sense of Silence Description/Summary:

Lennard J. Davis grew up as the hearing child of deaf parents. In this candid, affecting, and often funny memoir, he recalls the joys and confusions of this special world, especially his complex and sometimes difficult relationships with his working-class Jewish immigrant parents. Gracefully slipping through memory, regret, longing, and redemption, My Sense of Silence is an eloquent remembrance of human ties and human failings.

Shifting into High Gear

Author : Kyle Bryant
Publisher : Simon and Schuster
Release : 2019-02-26
Category : Biography & Autobiography
ISBN : 9780757321535

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Book Shifting into High Gear Description/Summary:

Shifting Into High Gear charts the course of Kyle Bryant's transformation as he journeys on a recumbent tricycle across the United States in the throes of Friedreich's ataxia, a life-shortening and disabling disease. Full of humor and reflection, it's a heroic journey of a man driven to reframe the language of disease through action and service. As you travel with Kyle during two cross-country bike rides through the American West, Texas, the Southern States, and finally to the shores of the Atlantic Ocean, the grueling rides become a compelling backdrop for a series of lessons and ruminations which embrace an alternative worldview and provide practical solutions to everyday problems. A thrilling adventure story, yes, Shifting Into High Gear is also ultimately about helping readers reinterpret the conditions of their lives and learning how positive thinking, purposeful connection, and deliberate actions can help anyone reach beyond their limits and live a bolder and bigger life no matter what the circumstance. Deeply passionate and compassionate, Kyle uses his amazing story to teach readers how to replace the handicapping language of "disability" with the agency to build a thriving and hopeful life. He bravely exposes the shadow-side of using disabling language and asks us to commit to a collective goal of understanding disease and its emotional impact and embrace the disabled population as equal individuals. In telling his story, Kyle's desire is that instead of viewing disease as a deficit, we would see it as another state of being—simply as a life which strikes out on a different path.

Disfigured

Author : Amanda Leduc
Publisher : Coach House Books
Release : 2020-02-11
Category : Literary Criticism
ISBN : 9781770566040

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Book Disfigured Description/Summary:

Fairy tales shape how we see the world, so what happens when you identify more with the Beast than Beauty? If every disabled character is mocked and mistreated, how does the Beast ever imagine a happily-ever-after? Amanda Leduc looks at fairy tales from the Brothers Grimm to Disney, showing us how they influence our expectations and behaviour and linking the quest for disability rights to new kinds of stories that celebrate difference. "Leduc persuasively illustrates the power of stories to affect reality in this painstakingly researched and provocative study that invites us to consider our favorite folktales from another angle." —Sara Shreve, Library Journal

About Us: Essays from the Disability Series of the New York Times

Author : Peter Catapano,Rosemarie Garland-Thomson
Publisher : Liveright Publishing
Release : 2019-09-03
Category : Social Science
ISBN : 9781631495861

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Book About Us: Essays from the Disability Series of the New York Times Description/Summary:

Based on the pioneering New York Times series, About Us collects the personal essays and reflections that have transformed the national conversation around disability. Boldly claiming a space in which people with disabilities can be seen and heard as they are—not as others perceive them—About Us captures the voices of a community that has for too long been stereotyped and misrepresented. Speaking not only to those with disabilities, but also to their families, coworkers and support networks, the authors in About Us offer intimate stories of how they navigate a world not built for them. Since its 2016 debut, the popular New York Times’ “Disability” column has transformed the national dialogue around disability. Now, echoing the refrain of the disability rights movement, “Nothing about us without us,” this landmark collection gathers the most powerful essays from the series that speak to the fullness of human experience—stories about first romance, childhood shame and isolation, segregation, professional ambition, child-bearing and parenting, aging and beyond. Reflecting on the fraught conversations around disability—from the friend who says “I don’t think of you as disabled,” to the father who scolds his child with attention differences, “Stop it stop it stop it what is wrong with you?”—the stories here reveal the range of responses, and the variety of consequences, to being labeled as “disabled” by the broader public. Here, a writer recounts her path through medical school as a wheelchair user—forging a unique bridge between patients with disabilities and their physicians. An acclaimed artist with spina bifida discusses her art practice as one that invites us to “stretch ourselves toward a world where all bodies are exquisite.” With these notes of triumph, these stories also offer honest portrayals of frustration over access to medical care, the burden of social stigma and the nearly constant need to self-advocate in the public realm. In its final sections, About Us turns to the questions of love, family and joy to show how it is possible to revel in life as a person with disabilities. Subverting the pervasive belief that disability results in relentless suffering and isolation, a quadriplegic writer reveals how she rediscovered intimacy without touch, and a mother with a chronic illness shares what her condition has taught her young children. With a foreword by Andrew Solomon and introductory comments by co-editors Peter Catapano and Rosemarie Garland-Thomson, About Us is a landmark publication of the disability movement for readers of all backgrounds, forms and abilities. Topics Include: Becoming Disabled • Mental Illness is not a Horror Show • Disability and the Right to Choose • Brain Injury and the Civil Right We Don’t Think • The Deaf Body in Public Space • The Everyday Anxiety of the Stutterer • I Use a Wheelchair. And Yes, I’m Your Doctor • A Symbol for “Nobody” That’s Really for Everybody • Flying While Blind • My $1,000 Anxiety Attack • A Girlfriend of My Own • The Three-Legged Dog Who Carried Me • Passing My Disability On to My Children • I Have Diabetes. Am I to Blame? • Learning to Sing Again • A Disabled Life is a Life Worth Living

Enabling Acts

Author : Lennard J. Davis
Publisher : Beacon Press
Release : 2016-06-07
Category : Law
ISBN : 9780807059296

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Book Enabling Acts Description/Summary:

"This book is the first major book to focus exclusively on the history and impact of the ADA which was the widest ranging piece of civil rights legislation in the history of the United States and has become the model for most civil rights laws around the world. Yet the history isn't a dry account of bills and speeches. Rather it tells the fascinating story of how a group of leftist Berkeley hippies managed to make an alliance with upper-crust, conservative Republicans to bring about a truly bi-partisan bill. It covers how major politicians fought in public while staffers hammered out the details amidst public demonstrations by disability activists providing momentum for all. The book provides behind the scenes accounts and never-before published intrigues that led to a successful outcome. In addition, the book will assess the impact and legacy of the ADA through the stories of individuals who have been affected by the legislation"--

Body Positive Power

Author : Megan Jayne Crabbe
Publisher : Seal Press
Release : 2018-09-11
Category : Self-Help
ISBN : 9781580058223

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Book Body Positive Power Description/Summary:

A body-positive call to arms that's as inspirational as it is practical, from Instagram star Megan Jayne Crabbe For generations, women have been convinced that true happiness only comes when we hit that goal weight, shrink ourselves down, and change ourselves to fit a rigid and unrealistic beauty ideal. We've been taught to see our bodies as collections of problems that need to be fixed. Instagram star Megan Jayne Crabbe is determined to spread the word that loving the body you have is the real path to happiness. An international body positive guru with fans in all corners of the world, Megan spent years battling eating disorders and weight fluctuations before she found her way to body positivity. She quit dieting, discovered a new kind of confidence, and replaced all those old feelings of body shame and self-recrimination with everyday joy. Free of the pressure to fit in a size 2, her life became more satisfying than ever before. In her debut book, Megan shares her own struggles with self-acceptance and her path to body positivity. With whip-smart wit and a bold attitude that lights up her Instagram feed, Megan champions a new worldview for all of us: It's time to stop dieting and get on with your life.

This is Me

Author : Chrissy Metz,Kevin Carr O'Leary
Publisher : Dey St
Release : 2018
Category : Self-actualization (Psychology) in women
ISBN : 0062871250

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Book This is Me Description/Summary:

As Kate Pearson on the television show This Is Us, Metz presents a character that viewers see themselves in, no matter what they look like or where they come from. Now she shares her story, and shows how she has applied the lessons she learned from both setbacks and successes. She offers practical applications of her insights, blending love and experience. Metz encourages us all to claim our rightful place in a world that may be trying to knock us down, find our own unique gifts, and pursue our dreams.

Inside My Outside

Author : Sara Pyszka
Publisher : Unknown
Release : 2020-03-10
Category : Uncategorized
ISBN : 9798621505226

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Book Inside My Outside Description/Summary:

Upon meeting Sara Pyszka, most people think they know what it's like to be her, regardless of what they actually know about her. They see her wheelchair. They see the computer attached to her chair. They may or may not see the bands that hold her arms down, or the buttons on either side of her head rest. They see, and probably speak with, whichever personal assistant is accompanying her that day. They see her, yes, but this doesn't mean they know anything about her. Few people can accurately imagine what it's like to be completely nonverbal, to be unable to walk or use their hands. They don't actually know what it's like to rely on strangers to get them out of bed and ready for the day, to feed them, to bathe them. Inside My Outside: An Independent Mind in a Dependent Body provides an in-depth look into the life of a young woman with cerebral palsy who cannot walk or talk but who uses an electronic device for communication. This memoir covers three full days, from morning to night, in Sara Pyszka's life, providing glimpses of past relationships, friendships, schooling, and outrageous stories about the challenges of hiring, firing, and working with personal care assistants. Sara even takes it a step further by providing the occasional comparison between her life and what she imagines life would be like if she did not have a disability.

Not So Different

Author : Shane Burcaw
Publisher : Roaring Brook Press
Release : 2017-11-07
Category : Juvenile Nonfiction
ISBN : 9781250197887

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Book Not So Different Description/Summary:

Not So Different offers a humorous, relatable, and refreshingly honest glimpse into Shane Burcaw’s life. Shane tackles many of the mundane and quirky questions that he’s often asked about living with a disability, and shows readers that he’s just as approachable, friendly, and funny as anyone else. Shane Burcaw was born with a rare disease called spinal muscular atrophy, which hinders his muscles’ growth. As a result, his body hasn’t grown bigger and stronger as he’s gotten older—it’s gotten smaller and weaker instead. This hasn’t stopped him from doing the things he enjoys (like eating pizza and playing sports and video games) with the people he loves, but it does mean that he routinely relies on his friends and family for help with everything from brushing his teeth to rolling over in bed. A Chicago Public Library Best Book of 2017

May's Boy

Author : Shirlee Monty
Publisher : Unknown
Release : 1983-02
Category : Social Science
ISBN : 0840757840

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Book May's Boy Description/Summary: