Download and Read Online Disability Visibility First Person Stories From The Twenty First Century Book
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According to the last census, one in five people in the United States lives with a disability. Some are visible, some are hidden--but all are underrepresented in media and popular culture. Now, just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong brings together an urgent, galvanizing collection of personal essays by contemporary disabled writers. There is Harriet McBryde Johnson's "Unspeakable Conversations," which describes her famous debate with Princeton philosopher Peter Singer over her own personhood. There is columnist s. e. smith's celebratory review of a work of theater by disabled performers. There are original pieces by up-and-coming authors like Keah Brown and Haben Girma. There are blog posts, manifestos, eulogies, and testimonies to Congress. Taken together, this anthology gives a glimpse of the vast richness and complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own assumptions and understandings. It celebrates and documents disability culture in the now. It looks to the future and past with hope and love.
Book About Us: Essays from the Disability Series of the New York Times Description/Summary:
Based on the pioneering New York Times series, About Us collects the personal essays and reflections that have transformed the national conversation around disability. Boldly claiming a space in which people with disabilities can be seen and heard as they are—not as others perceive them—About Us captures the voices of a community that has for too long been stereotyped and misrepresented. Speaking not only to those with disabilities, but also to their families, coworkers and support networks, the authors in About Us offer intimate stories of how they navigate a world not built for them. Since its 2016 debut, the popular New York Times’ “Disability” column has transformed the national dialogue around disability. Now, echoing the refrain of the disability rights movement, “Nothing about us without us,” this landmark collection gathers the most powerful essays from the series that speak to the fullness of human experience—stories about first romance, childhood shame and isolation, segregation, professional ambition, child-bearing and parenting, aging and beyond. Reflecting on the fraught conversations around disability—from the friend who says “I don’t think of you as disabled,” to the father who scolds his child with attention differences, “Stop it stop it stop it what is wrong with you?”—the stories here reveal the range of responses, and the variety of consequences, to being labeled as “disabled” by the broader public. Here, a writer recounts her path through medical school as a wheelchair user—forging a unique bridge between patients with disabilities and their physicians. An acclaimed artist with spina bifida discusses her art practice as one that invites us to “stretch ourselves toward a world where all bodies are exquisite.” With these notes of triumph, these stories also offer honest portrayals of frustration over access to medical care, the burden of social stigma and the nearly constant need to self-advocate in the public realm. In its final sections, About Us turns to the questions of love, family and joy to show how it is possible to revel in life as a person with disabilities. Subverting the pervasive belief that disability results in relentless suffering and isolation, a quadriplegic writer reveals how she rediscovered intimacy without touch, and a mother with a chronic illness shares what her condition has taught her young children. With a foreword by Andrew Solomon and introductory comments by co-editors Peter Catapano and Rosemarie Garland-Thomson, About Us is a landmark publication of the disability movement for readers of all backgrounds, forms and abilities. Topics Include: Becoming Disabled • Mental Illness is not a Horror Show • Disability and the Right to Choose • Brain Injury and the Civil Right We Don’t Think • The Deaf Body in Public Space • The Everyday Anxiety of the Stutterer • I Use a Wheelchair. And Yes, I’m Your Doctor • A Symbol for “Nobody” That’s Really for Everybody • Flying While Blind • My $1,000 Anxiety Attack • A Girlfriend of My Own • The Three-Legged Dog Who Carried Me • Passing My Disability On to My Children • I Have Diabetes. Am I to Blame? • Learning to Sing Again • A Disabled Life is a Life Worth Living
“A delight and highly recommended.” —Booklist “Showcases the truth and fullness of people of color.” —Book Riot In the tradition of Best American Short Stories comes Everyday People: The Color of Life, a dazzling collection of contemporary short fiction. Everyday People is a thoughtfully curated anthology of short stories that presents new and renowned work by established and emerging writers of color. It illustrates the dynamics of character and culture that reflect familial strife, political conflict, and personal turmoil through an array of stories that reveal the depth of the human experience. Representing a wide range of styles, themes, and perspectives, these selected stories depict moments that linger—crossroads to be navigated, relationships, epiphanies, and times of doubt, loss, and discovery. A celebration of writing and expression, Everyday People brings to light the rich tapestry that binds us all. The contributors are an eclectic mix of award-winning and critically lauded writers, including Mia Alvar, Carleigh Baker, Nana Brew-Hammond, Glendaliz Camacho, Alexander Chee, Mitchell S. Jackson, Yiyun Li, Allison Mills, Courttia Newland, Dennis Norris II, Jason Reynolds, Nelly Rosario, Hasanthika Sirisena, and Brandon Taylor. Some of the proceeds from the sale of Everyday People will benefit the Rhode Island Writers Colony, a nonprofit organization founded by the late Brook Stephenson that provides space for speculation, production, and experimentation by writers of color.
From the disability rights advocate and creator of the #DisabledAndCute viral campaign, a thoughtful, inspiring, and charming collection of essays exploring what it means to be black and disabled in a mostly able-bodied white America. Keah Brown loves herself, but that hadn’t always been the case. Born with cerebral palsy, her greatest desire used to be normalcy and refuge from the steady stream of self-hate society strengthened inside her. But after years of introspection and reaching out to others in her community, she has reclaimed herself and changed her perspective. In The Pretty One, Brown gives a contemporary and relatable voice to the disabled—so often portrayed as mute, weak, or isolated. With clear, fresh, and light-hearted prose, these essays explore everything from her relationship with her able-bodied identical twin (called “the pretty one” by friends) to navigating romance; her deep affinity for all things pop culture—and her disappointment with the media’s distorted view of disability; and her declaration of self-love with the viral hashtag #DisabledAndCute. By “smashing stigmas, empowering her community, and celebrating herself” (Teen Vogue), Brown and The Pretty One aims to expand the conversation about disability and inspire self-love for people of all backgrounds.
Book Nothing About Us Without Us Description/Summary:
James Charlton has produced a ringing indictment of disability oppression, which, he says, is rooted in degradation, dependency, and powerlessness and is experienced in some form by five hundred million persons throughout the world who have physical, sensory, cognitive, or developmental disabilities. Nothing About Us Without Us is the first book in the literature on disability to provide a theoretical overview of disability oppression that shows its similarities to, and differences from, racism, sexism, and colonialism. Charlton's analysis is illuminated by interviews he conducted over a ten-year period with disability rights activists throughout the Third World, Europe, and the United States. Charlton finds an antidote for dependency and powerlessness in the resistance to disability oppression that is emerging worldwide. His interviews contain striking stories of self-reliance and empowerment evoking the new consciousness of disability rights activists. As a latecomer among the world's liberation movements, the disability rights movement will gain visibility and momentum from Charlton's elucidation of its history and its political philosophy of self-determination, which is captured in the title of his book. Nothing About Us Without Us expresses the conviction of people with disabilities that they know what is best for them. Charlton's combination of personal involvement and theoretical awareness assures greater understanding of the disability rights movement.
At the age of four, Jaipreet Virdi’s world went silent. A severe case of meningitis left her alive but deaf, suddenly treated differently by everyone. Her deafness downplayed by society and doctors, she struggled to “pass” as hearing for most of her life. Countless cures, treatments, and technologies led to dead ends. Never quite deaf enough for the Deaf community or quite hearing enough for the “normal” majority, Virdi was stuck in aural limbo for years. It wasn’t until her thirties, exasperated by problems with new digital hearing aids, that she began to actively assert her deafness and reexamine society’s—and her own—perception of life as a deaf person in America. Through lyrical history and personal memoir, Hearing Happiness raises pivotal questions about deafness in American society and the endless quest for a cure. Taking us from the 1860s up to the present, Virdi combs archives and museums in order to understand the long history of curious cures: ear trumpets, violet ray apparatuses, vibrating massagers, electrotherapy machines, airplane diving, bloodletting, skull hammering, and many more. Hundreds of procedures and products have promised grand miracles but always failed to deliver a universal cure—a harmful legacy that is still present in contemporary biomedicine. Weaving Virdi’s own experiences together with her exploration into the fascinating history of deafness cures, Hearing Happiness is a powerful story that America needs to hear.
“This book reminds us of what we have in common: the power to create a good life for ourselves and for others, no matter what the world has in store for us.” —Michael J. Fox This book reveals that people with disabilities are the invisible force that has shaped history. They have been instrumental in the growth of freedom and birth of democracy. They have produced heavenly music and exquisite works of art. They have unveiled the scientific secrets of the universe. They are among our most popular comedians, poets, and storytellers. And at 1.2 billion, they are also the largest minority group in the world. Al Etmanski offers ten lessons we can all learn from people with disabilities, illustrated with short, funny, inspiring, and thought-provoking stories of one hundred individuals from twenty countries. Some are familiar, like Michael J. Fox, Greta Thunberg, Stephen Hawking, Helen Keller, Stevie Wonder, and Temple Grandin. Others deserve to be, like Evelyn Glennie, a virtuoso percussionist who is deaf—her mission is to teach the world to listen to improve communication and social cohesion. Or Aaron Philip, who has revolutionized the runway as the first disabled, trans woman of color to become a professional model. The time has come to recognize people with disabilities for who they really are: authoritative sources on creativity, love, sexuality, resistance, dealing with adversity, and living a good life.
Fairy tales shape how we see the world, so what happens when you identify more with the Beast than Beauty? If every disabled character is mocked and mistreated, how does the Beast ever imagine a happily-ever-after? Amanda Leduc looks at fairy tales from the Brothers Grimm to Disney, showing us how they influence our expectations and behaviour and linking the quest for disability rights to new kinds of stories that celebrate difference. "Leduc persuasively illustrates the power of stories to affect reality in this painstakingly researched and provocative study that invites us to consider our favorite folktales from another angle." —Sara Shreve, Library Journal
An approachable guide to being a thoughtful, informed ally to disabled people, with actionable steps for what to say and do (and what not to do) and how you can help make the world a more inclusive place "A candid, accessible cheat sheet for anyone who wants to thoughtfully join the conversation . . . Emily makes the intimidating approachable and the complicated clear."--Rebekah Taussig, author of Sitting Pretty: The View from My Ordinary, Resilient, Disabled Body People with disabilities are the world's largest minority, an estimated 15 percent of the global population. But many of us--disabled and nondisabled alike--don't know how to act, what to say, or how to be an ally to the disability community. Demystifying Disability is a friendly handbook on the important disability issues you need to know about, including: - How to appropriately think, talk, and ask about disability - Recognizing and avoiding ableism (discrimination toward disabled people) - Practicing good disability etiquette - Ensuring accessibility becomes your standard practice, from everyday communication to planning special events - Appreciating disability history and identity - Identifying and speaking up about disability stereotypes in media Authored by celebrated disability rights advocate, speaker, and writer Emily Ladau, this practical, intersectional guide offers all readers a welcoming place to understand disability as part of the human experience. Praise for Demystifying Disability "Whether you have a disability, or you are non-disabled, Demystifying Disability is a MUST READ. Emily Ladau is a wise spirit who thinks deeply and writes exquisitely."--Judy Heumann, international disability rights advocate and author of Being Heumann "Emily Ladau has done her homework, and Demystifying Disability is her candid, accessible cheat sheet for anyone who wants to thoughtfully join the conversation. A teacher who makes you forget you're learning, Emily makes the intimidating approachable and the complicated clear. This book is a generous and needed gift."--Rebekah Taussig, author of Sitting Pretty: The View from My Ordinary Resilient Disabled Body
Book Being Heumann Large Print Edition Description/Summary:
A Publishers Weekly Best Book of the Year for Nonfiction "...an essential and engaging look at recent disability history."— Buzzfeed One of the most influential disability rights activists in US history tells her personal story of fighting for the right to receive an education, have a job, and just be human. A story of fighting to belong in a world that wasn’t built for all of us and of one woman’s activism—from the streets of Brooklyn and San Francisco to inside the halls of Washington—Being Heumann recounts Judy Heumann’s lifelong battle to achieve respect, acceptance, and inclusion in society. Paralyzed from polio at eighteen months, Judy’s struggle for equality began early in life. From fighting to attend grade school after being described as a “fire hazard” to later winning a lawsuit against the New York City school system for denying her a teacher’s license because of her paralysis, Judy’s actions set a precedent that fundamentally improved rights for disabled people. As a young woman, Judy rolled her wheelchair through the doors of the US Department of Health, Education, and Welfare in San Francisco as a leader of the Section 504 Sit-In, the longest takeover of a governmental building in US history. Working with a community of over 150 disabled activists and allies, Judy successfully pressured the Carter administration to implement protections for disabled peoples’ rights, sparking a national movement and leading to the creation of the Americans with Disabilities Act. Candid, intimate, and irreverent, Judy Heumann’s memoir about resistance to exclusion invites readers to imagine and make real a world in which we all belong.
A deafblind writer and professor explores how the misrepresentation of disability in books, movies, and TV harms both the disabled community and everyone else. As a deafblind woman with partial vision in one eye and bilateral hearing aids, Elsa Sjunneson lives at the crossroads of blindness and sight, hearing and deafness—much to the confusion of the world around her. While she cannot see well enough to operate without a guide dog or cane, she can see enough to know when someone is reacting to the visible signs of her blindness and can hear when they’re whispering behind her back. And she certainly knows how wrong our one-size-fits-all definitions of disability can be. As a media studies professor, she’s also seen the full range of blind and deaf portrayals on film, and here she deconstructs their impact, following common tropes through horror, romance, and everything in between. Part memoir, part cultural criticism, part history of the deafblind experience, Being Seen explores how our cultural concept of disability is more myth than fact, and the damage it does to us all.
This PEN/Bellwether Prize–winning novel set in a state-run facility for disabled teenagers is “saucy, brutally funny, gritty, profane, poignant and real” (The Kansas City Star). Playwright and activist Susan Nussbaum’s powerful debut novel invites us into the lives of a group of typical teenagers—alienated, funny, yearning for autonomy—except that they live in an institution for juveniles with disabilities. This unfamiliar, isolated landscape is much the same as the world outside: friendships are forged, trust is built, love affairs are kindled, and rules are broken. But those who call it home have little or no control over their fate. Good Kings Bad Kings challenges our definitions of what it means to be disabled in a story told with remarkable authenticity and in voices that resound with humor and spirit. “This is fiction at its best . . . Simply and breathtakingly honest . . . A stunning accomplishment.” —Barbara Kingsolver “Nussbaum’s dramatist skills translate powerfully into fiction as she gives voices to an infatuating cast of characters . . . This is unquestionably an authentic, galvanizing, and righteous novel.” —Booklist (starred review)
The field of disability history continues to evolve rapidly. In this collection, Susan Burch and Michael Rembis present nineteen essays that integrate critical analysis of gender, race, historical context, and other factors to enrich and challenge the traditional modes of interpretation still dominating the field. As the first collection of its kind in over a decade, Disability Histories not only brings readers up to date on scholarship within the field but fosters the process of moving it beyond the U.S. and Western Europe by offering work on Africa, South America, and Asia. The result is a broad range of readings that open new vistas for investigation and study while encouraging scholars at all levels to redraw the boundaries that delineate who and what is considered of historical value. Informed and accessible, Disability Histories is essential for classrooms engaged in all facets of disability studies within and across disciplines. Contributors are Frances Bernstein, Daniel Blackie, Pamela Block, Elsbeth Bösl, Dea Boster, Susan K. Cahn, Alison Carey, Fatima Cavalcante, Jagdish Chander, Audra Jennings, John Kinder, Catherine Kudlick, Paul R. D. Lawrie, Herbert Muyinda, Kim E. Nielsen, Katherine Ott, Stephen Pemberton, Anne Quartararo, Amy Renton, and Penny Richards.
Book Disability Visibility (Adapted for Young Adults) Description/Summary:
Disabled young people will be proud to see themselves reflected in this hopeful, compelling, and insightful essay collection, adapted for young adults from the critically acclaimed adult book, Disability Visibility: First Person Stories from the Twenty-First Century that "sheds light on the experience of life as an individual with disabilities, as told by none other than authors with these life experiences." --Chicago Tribune, "Best books published in summer 2020" (Vintage/Knopf Doubleday edition). The seventeen eye-opening essays in Disability Visibility, all written by disabled people, offer keen insight into the complex and rich disability experience, examining life's ableism and inequality, its challenges and losses, and celebrating its wisdom, passion, and joy. The accounts in this collection ask readers to think about disabled people not as individuals who need to be “fixed,” but as members of a community with its own history, culture, and movements. They offer diverse perspectives that speak to past, present, and future generations. It is essential reading for all.
Book A Disability History of the United States Description/Summary:
The first book to cover the entirety of disability history, from pre-1492 to the present Disability is not just the story of someone we love or the story of whom we may become; rather it is undoubtedly the story of our nation. Covering the entirety of US history from pre-1492 to the present, A Disability History of the United States is the first book to place the experiences of people with disabilities at the center of the American narrative. In many ways, it’s a familiar telling. In other ways, however, it is a radical repositioning of US history. By doing so, the book casts new light on familiar stories, such as slavery and immigration, while breaking ground about the ties between nativism and oralism in the late nineteenth century and the role of ableism in the development of democracy. A Disability History of the United States pulls from primary-source documents and social histories to retell American history through the eyes, words, and impressions of the people who lived it. As historian and disability scholar Nielsen argues, to understand disability history isn’t to narrowly focus on a series of individual triumphs but rather to examine mass movements and pivotal daily events through the lens of varied experiences. Throughout the book, Nielsen deftly illustrates how concepts of disability have deeply shaped the American experience—from deciding who was allowed to immigrate to establishing labor laws and justifying slavery and gender discrimination. Included are absorbing—at times horrific—narratives of blinded slaves being thrown overboard and women being involuntarily sterilized, as well as triumphant accounts of disabled miners organizing strikes and disability rights activists picketing Washington. Engrossing and profound, A Disability History of the United States fundamentally reinterprets how we view our nation’s past: from a stifling master narrative to a shared history that encompasses us all.
Book Ableism: The Causes and Consequences of Disability Prejudice Description/Summary:
The first comprehensive volume to integrate social-scientific literature on the origins and manifestations of prejudice against disabled people Ableism, prejudice against disabled people stereotyped as incompetent and dependent, can elicit a range of reactions that include fear, contempt, pity, and inspiration. Current literature—often narrowly focused on a specific aspect of the subject or limited in scope to psychoanalytic tradition—fails to examine the many origins and manifestations of ableism. Filling a significant gap in the field, Ableism: The Causes and Consequences of Disability Prejudice is the first work to synthesize classic and contemporary studies on the evolutionary, ideological, and cognitive-emotional sources of ableism. This comprehensive volume examines new manifestations of ableism, summarizes the state of research on disability prejudice, and explores real-world personal accounts and interventions to illustrate the various forms and impacts of ableism. This important contribution to the field combines evidence from multiple theoretical perspectives, including published and unpublished work from both disabled and nondisabled constituents, on the causes, consequences, and elimination of disability prejudice. Each chapter places findings in the context of contemporary theories—identifying methodological limits and suggesting alternative interpretations. Topics include the evolutionary and existential origins of disability prejudice, cultural and impairment-specific stereotypes, interventions to reduce prejudice, and how to effect social change through collective action and advocacy. Adopting a holistic approach to the study of disability prejudice, this accessibly-written volume: Provides an inclusive, up-to-date exploration of the origins and expressions of ableism Addresses how to resist ableist practices, prioritize accessible policies, and create more equitable social relations with pages earmarked for activists and allies Focuses on interpersonal and intergroup analysis from a social-psychological perspective Integrates research from multiple disciplines to illustrate critical cognitive, affective and behavioral mechanisms and manifestations of ableism Suggests future research directions based on topics covered in each chapter Ableism: The Causes and Consequences of Disability Prejudice is an important resource for social, community and rehabilitation psychologists, scholars and researchers of disability studies, and students, activists, and academics across political, sociological, and humanistic disciplines.
Book Capitalism and Disability Description/Summary:
Spread out over many years and many different publications, the late author and activist Marta Russell wrote a number of groundbreaking and insightful essays on the nature of disability and oppression under capitalism. In this volume, Russell’s various essays are brought together in one place in order to provide a useful and expansive resource to those interested in better understanding the ways in which the modern phenomenon of disability is shaped by capitalist economic and social relations. The essays range in analysis from the theoretical to the topical, including but not limited to: the emergence of disability as a “human category” rooted in the rise of industrial capitalism and the transformation of the conditions of work, family, and society corresponding thereto; a critique of the shortcomings of a purely “civil rights approach” to addressing the persistence of disability oppression in the economic sphere, with a particular focus on the legacy of the Americans with Disabilities Act of 1990; an examination of the changing position of disabled people within the overall system of capitalist production utilizing the Marxist economic concepts of the reserve army of the unemployed, the labor theory of value, and the exploitation of wage-labor; the effects of neoliberal capitalist policies on the living conditions and social position of disabled people as it pertains to welfare, income assistance, health care, and other social security programs; imperialism and war as a factor in the further oppression and immiseration of disabled people within the United States and globally; and the need to build unity against the divisive tendencies which hide the common economic interest shared between disabled people and the often highly-exploited direct care workers who provide services to the former.