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Book Coming Home from the NICU Description/Summary:
Support the transition from NICU to home with this accessible book, the complete guide to helping parents meet their baby's special needs, develop strong parent-child bonds, and ensure optimal development in the first year after homecoming.
Book When Is Baby Coming Home? Description/Summary:
"When is Baby Coming Home?: A NICU Story" is written about a baby being born before the due date and having to spend some time in the Neonatal Intensive Care Unit. Children under the age of 14, (18 during flu season) are not allowed in NICUs. Siblings at home often have many questions/concerns about their brother/sister still in the hospital. This book answers some of the questions they may have and can prepare them for the circumstances to follow a premature birth.
In her early thirties, Kasey Mathews had it all: a loving husband, a beautiful two-year-old son, and a second baby on the way. But what seemed a perfect life was shattered when she went into labor four months early, delivering her one-pound, eleven-ounce daughter, Andie. The first time Kasey was wheeled into the Neonatal Intensive Care Unit (NICU), nothing prepared her for what she saw: a tiny, fragile baby in a tangle of tubes and wires. All at once, Kasey was confronted with a new and terrifying reality that would test the limits of love, family, and motherhood. In this riveting, honest, and often humorous memoir, Preemie chronicles the journey of one tiny baby’s tenacious struggle to hold on to life and the mother who ultimately grew with her. From hospital waiting rooms to the offices of alternative practitioners, from ski slopes to Symphony Hall, Kasey tries to make meaning of her daughter’s birth and eventually comes to learn that gifts come in all sizes and all forms, and sometimes... right on time.
Book Guess Who Is Coming Home Soon ! Description/Summary:
Andrew, a six year old first Grader has a sister named Angel who is born prematurely. He shares with his friends and the rest of us, the anticipation of a young lad who is going to be a big brother, the disappointment of learning that his sister has to remain in the NICU (Neonatal Intensive Care Unit) and the triumph of an exciting home coming. This is book is to be read and shared with the siblings of newborn babies to help relieve their anxiety and confusion about their sibling remaining in Hospital for prolonged periods after birth.
An essential resource for parents of premature babies. The birth of a new baby is a time full of joy and wonder. But when your baby is born premature, that joy also comes with stresses and challenges. Written for parents, but full of practical advice for health care professionals alike, Preemie Care helps ease the unique preemie journey to health, with a comprehensive guide to the first year of life. Leading neonatal nurse specialists Karen Lasby and Tammy Sherrow draw on their decades of experience, empowering you with the knowledge and resources to give your little one the best possible start in life--in the NICU and beyond. In Preemie Care, you will learn: - How to care for yourself and your baby while in the NICU - What to expect at the time of discharge, and how to prepare for the journey home - Strategies to foster your baby's health and prevent illness - Everything you need to know about feeding--from the breast, bottle, tube, and spoon - How to support and stimulate your baby at each key developmental phase - Tips for self-care during this challenging year - And much, much more, including stories from other preemie parents Having a premature baby can feel like an unexpected journey on rough seas. With extensive and up-to-date information about how to look after your little one, Preemie Care will be a life preserver through these tumultuous waters and will help steer you confidently through the first year of your baby's life.
Book Preemies - Second Edition Description/Summary:
The comprehensive “Dr. Spock”-like reference that is both reassuring and realistic—now updated to reflect the many advances in neonatology. Preemies, Second Edition is the only parents’ reference resource of its kind—delivering up-to-the-minute information on medical care in a warm, caring, and engaging voice. Authors Dana Wechsler Linden and Emma Trenti Paroli are parents who have “been there.” Together with neonatologist Mia Wechsler Doron, they answer the dozens of questions that parents will have at every stage—from high-risk pregnancy through preemie hospitalization, to homecoming and the preschool years—imparting a vast, detailed store of knowledge in clear language that all readers can understand. Preemies, Second Edition covers topics related to premature birth, including: What are your risk factors for having a premature baby? Can you do something to delay early labor? What do doctors know about you baby’s outlook during her first minutes and days of life? How will your preemie’s progress be monitored? How do you cope with a long hospitalization? Are there special preparations for you baby’s homecoming? What kind of stimulation during the first year gives your baby the best chance? Will your preemie grow up healthy? Normal?
Visiting a neonatal intensive care unit can be an overwhelming experience, especially for a young child during sibling visitation. The sibling will see monitoring equipment, breathing machines, intravenous pumps and incubators. They will hear alarms ringing and sometimes babies crying. Preparing children for the NICU environment is crucial so they are not as fearful and can focus on bonding with their new sibling.
Parenthood transforms you. Even before this crisis, you may have experienced a wide range of feelings triggered by pregnancy, birth, and welcoming a new baby. The NICU experience challenges your emotional coping, your developing parental identity, your relationship skills, and your ability to adjust.Intensive Parenting explores the emotions of parenting in the neonatal intensive care unit, from in-hospital through issues and concerns after the child is home. Deboral L. Davis and Mara Tesler Stein describe and affirm the wide range of experiences and emotional reactions that occur in the NICU and offer strategies for parents coping with their baby's condition and hospitalization.
Book Dear Zoe || Love Dad: Our Journey through IVF to the NICU to your 1st Birthday Description/Summary:
I began writing to my unborn child as soon as my wife and I decided to have a child. Never could I have imagined what an amazing journey was set in motion. These intensely personal letters capture my hopes and fears as my wife and I progress through the various stages of IVF, our daughter's stay in the NICU, and our first year as a family. From giving my wife daily shots to staring at the various screens monitoring my newborn daughter, the book attempts to capture the emotions of a loving husband and father trying to be the man both his girls need. The book concludes with my honest, unadulterated reflections on having going through IVF and the NICU. My hope is that my candid sharing may help others gain a greater sense of the emotions involved in having an IVF or NICU baby.
National Research Council,Division of Behavioral and Social Sciences and Education,Board on Human-Systems Integration,Committee on the Role of Human Factors in Home Health Care
Author : National Research Council,Division of Behavioral and Social Sciences and Education,Board on Human-Systems Integration,Committee on the Role of Human Factors in Home Health Care
Publisher : National Academies Press
Release : 2011-07-22
Category : Medical
ISBN : 9780309212366
In the United States, health care devices, technologies, and practices are rapidly moving into the home. The factors driving this migration include the costs of health care, the growing numbers of older adults, the increasing prevalence of chronic conditions and diseases and improved survival rates for people with those conditions and diseases, and a wide range of technological innovations. The health care that results varies considerably in its safety, effectiveness, and efficiency, as well as in its quality and cost. Health Care Comes Home reviews the state of current knowledge and practice about many aspects of health care in residential settings and explores the short- and long-term effects of emerging trends and technologies. By evaluating existing systems, the book identifies design problems and imbalances between technological system demands and the capabilities of users. Health Care Comes Home recommends critical steps to improve health care in the home. The book's recommendations cover the regulation of health care technologies, proper training and preparation for people who provide in-home care, and how existing housing can be modified and new accessible housing can be better designed for residential health care. The book also identifies knowledge gaps in the field and how these can be addressed through research and development initiatives. Health Care Comes Home lays the foundation for the integration of human health factors with the design and implementation of home health care devices, technologies, and practices. The book describes ways in which the Agency for Healthcare Research and Quality (AHRQ), the U.S. Food and Drug Administration (FDA), and federal housing agencies can collaborate to improve the quality of health care at home. It is also a valuable resource for residential health care providers and caregivers.
Book Caring for Your Baby and Young Child Description/Summary:
A latest edition of a best-selling reference features a new design and expanded information on the preschooler years, in a guide that covers topics ranging from infant care and food allergies to sleeping habits and autism. Original.
Having an infant in the Neonatal Intensive Care Unit is full of a flurry of emotions overshadowed by anxiety. An admission to the NICU is not anticipated and therefore can be a very trying experience. Explaining the hospitalization of the baby to the other children in your home can be challenging. The baby's siblings may be too young to understand, fearful of hospitals, or even upset that you are spending more time at the hospital than at home. This short book can serve as a light introduction to the NICU and foster further discussion with your other children or young relatives. It is best read together, ideally before a visit to the NICU. In addition to visiting the hospital, establish some routines and alone time with your children at home to help ease the transition as your new baby grows and heals in the intensive care unit.
Book Care Coordination in the NICU Description/Summary:
Focuses on nurturing the emotional health of patients and families to ensure improved outcomes This innovative clinical practice resource for neonatal nurses embodies family-centered care strategies for optimal outcomes through every phase of the NICU experience. While rigorous programs provide the knowledge and skills to care for the physical needs of high-risk mothers and neonates, NICU practitioners often find themselves unprepared to support the emotional health of these patients and their families. Care Coordination in the NICU provides the education, inspiration, and resources to NICU health professionals so they can learn how to be emotionally supportive to their patient’s entire family unit. The book addresses a variety of challenging patient and family issues that occur in the NICU as they relate to care coordination throughout the process. Each chapter focuses on a particular area of the perinatal/neonatal family journey, and includes current medical research, clinical examples, and recommendations for best practice alongside case studies that depict families experiencing a perinatal challenge. Most valuable of all, each chapter also includes stories directly from the source, the families, who have experienced the fear, isolation, and uncertainly of an NICU experience, and have greatly benefited from the emotional support of caring practitioners. Key Features: Examines the gamut of challenging patient and family issues that occur in the NICU as they relate to care coordination throughout the process Helps practitioners to incorporate family-centered care into their daily practices Discusses effective listening and communication strategies for families in crisis Includes examples of practice improvement strategies to improve clinical outcome and reduce the risk of re-hospitalization Provides a Case-Based Learning section depicting real-world scenarios for discussion and problem-solving Includes links to abundant resources and educational material Contains chapters on palliative care and bereavement and supporting patients with special challenges.
Book A Preemie Parent's Survival Guide to the NICU Description/Summary:
A Preemie Parent's Survival Guide to the NICU details the journey of Megan Grandinetti and her husband during their NICU stay with their daughter Sofie. Sofie was born at 26 weeks and stayed for a tumultuous 5 months in the hospital. Megan gives new parents of preemies pieces of advice she wishes she had been told coming into the NICU. Through 18 personal tips, Megan paints a colorful overview of Sofie's time in the hospital, and the things she feels were critical to her family's success.
Lianne Totty a children book author looking to use her past experiences to help others cope. She hopes to help plant the seeds of hope and peace in the hearts of those who have an extended NICU stay ahead or have experienced loss. Lianne Totty is a Patient Services Administrator at a major teaching hospital in Washington DC. After battling infertility and multiple losses in 2016, Lianne and her husband delivered her miracle baby at 27 weeks and spent 6 terrifying months in the Neonatal Intensive care Unit (NICU) at that hospital, eventually losing the baby. That sent them on an emotional journey that led to her writing the book "Baby Went to Heaven," as a tool for parents who've left toddlers and other small children at home; and must later explain to them why the baby they were all eagerly expecting never comes home. They eventually went on to have another baby who was born at 25 weeks at same hospital but with a much different outcome. Lucas is alive and thriving. He truly is her light. Lianne's story of loss and recovery encompasses the hopes and fears of every parent, a story that those who have suffered the death of a child will relate to.
This GOREGOUS twin NICU journal makes the perfect gift for twin moms! Every twin journey is unique. Sometimes they enter the world together and sometimes they don't. Often one or both are in the NICU. Sometimes one comes home from the NICU before the other. Other times they are both in the NICU for months. With space for 90 days of documenting and journaling, this twin NICU journal is easily adapted to your situation. Beginning with a visitor guestbook to log those who are able (and allowed) to visit, this journal continues on to gorgeous spreads. One side of each spread has a beautiful layout with room for tracking which twin, the gestational age, weight, and how many days they have been in the NICU (or at home) as well as a list to check-mark things that were done that day and space to track feedings, medical stats, tests, or other laboratory results. The other side of each spread has a journaling section giving flexibility to tailor this page to your own situation. Document highs/lows or a prayer for the day. Write down your worries, fears, or goals for your babies. This side of each spread ends with a space to jot down questions to ask and a place to focus on gratitude for the day to keep your spirits up. With a unisex, Scandinavian theme, this minimalist and modern design works for twin girls, twin boys, or boy-girl twins and can be modified to almost any situation. Beautiful hand drawn graphics adorn each page with a mountain and forest theme. Perfectly sized at 7x10, it is a good sized journal but still fits in a bag or purse as needed. FEATURES Premium Matte Soft Cover Printed on Bright White Interior Stock Convenient 7" x 10" Size 186 Pages (93 pages front/back) Designed By A Fellow TWIN Mama In The U.S.A.
'A Journey to Home' is a comprehensive Preemie Baby Book and NICU Journal. Over three years in the making, this journal will be a companion during the NICU stay, and a book of memories in the future. It is a book of expectations, setting parents up for a true understanding of what is to come. It builds resources while celebrating the joys of their baby's life. “The development of this book began 4 hours after the birth of my son. I longed to be able to journal and have a keepsake that was adjusted to my premature child.” “In my personal journey, I have found that you must find peace with being a parent of a preemie. It is only after much time that I have been able to rejoice with my toddler, and shed layers of protection that sheltered us from harm in the past. I will look at him with a little less guilt in my heart, and continue to treasure every breath, word, and step that he takes in his life.”